Jippi! Lillgumman går äntligen upp i vikt. Skönt! Dock har hon problem med magen och får jätteont när hon ska matas. Svårt att bajsa oxå...Har fått tarmsonder nu så får hoppas att det kan bli bättre med det.
Annars rullar allt på som vanligt här hemma. Som vanligt?! Ganska sjukt hur snabbt man kommer in i en vardag som egentligen inte borde få kallas vanlig.
Wilda matas 8 ggr per dygn och tar ca 1 h per matning. Felicia ska "matas" 6 ggr per dygn enligt fast schema och vegetarisk ska det vara...sen ska vi andra i familjen oxå ha mat. Mycket jobb bara med denna biten.......blir trött bara man tänker på det.
Wilda glömmer bort sig ganska ofta med andningen och behöver stimuleras. Vissa dagar är det värre än andra.
Imorgon fyller Felicia 15 år. Helt sjukt vad tiden går. Man börjar känna sig gammal trots att man precis "bara" har fyllt 32. Iallafall blir det mysdag med Felli imorgon innan alla syskonen kommer hem imorgon kväll. Då blir det god middag och paketöppning. Storkalaset har vi på söndag. Lite social samverkan ska bli skönt för att få tänka på annat.
Vill passa på att Hedra minnet av en liten kille med Trisomi 13 som nu blivit ängel. Han blev nästan 9 år gammal. Tänder ett ljus för Zion och hans familj.
Kram på er alla så länge! Nilla
7 kommentarer:
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